November Looms

Emma: I want you to tell them it ain't so tragic! People do get better!
Patsy: What do you want me to do?
Emma: Tell them it's OK to talk about the cancer!

from the book, "Terms of Endearment"

During the phone call, a family member was struck by the fact I had not informed everyone. She wanted to know how my complete circle of friends and acquaintances could not be told.

I had my reasons.

I was also free to change my mind.

For the past couple of years I have been under treatment for cancer.

It all began as a nagging point of tenderness in my chest ~ just where my sternum meets with one of my ribs. With one finger, I could isolate the pain and "rub" it away. It went on this way for another couple of months or more ~ no better and no worse. It was tolerable.

Until the night I was awakened by a breath-robbing pain elicited by simply turning onto my side. This was definitely not normal by any stretch. I chose to ignore it anyway.

It did not take long, however, for me to realize I could no longer fool myself into believing the pain might be inconsequential.

I enjoyed a momentary reprieve, however, after talking with some of my colleagues, all of whom were certain the totality of my symptoms pointed to a nerve root compression injury from working out. "We are tired of watching you rub your chest ~ go order a damned MRI and get the problem fixed."

It was not a nerve root compression injury.

The MRI isolated a golf ball-sized mass encroaching on the neurovascular bundle under one of my ribs.

Following an extensive evaluation, a diagnosis was returned: In oncology-speak, the mass represented a high-grade, 3BE Anaplastic Large Cell Lymphoma.

This past March I drove to the cancer center to undergo yet another round of RCHOP21; my second complete course of chemotherapy (due to failure of initial treatment or relapse). As I sat in the waiting room of the lab, I heard my name being called. The woman shouting my name was clearly not one of the lab technicians; she was either a physician or a nurse.

She came forward and introduced herself to me, asked a few probing questions and then left the room. She repeated this process another two or three times before finally explaining that, "the head of the BMT Department would like to speak with (me)." Huh?

I was then ushered into a nearby conference room where a physician (I had never met) was seated at a table reviewing my treatment records. What?

Without wasting a breath, the stranger proceeded to inform me that, as a specialist, he was not confident I would be able to, "see (my) way to a cure without a transplant."

I felt dizzy. "What kind of transplant?" (A stupid question but I was in shock.)

Seeming to appreciate my confused state, the physician hesitated and then smiled as he replied, "A bone marrow transplant, Dr. Marvin."

I am currently biding my time as I await another diagnostic biopsy this November. My transplant future will depend on the outcome of this test.

So, going back to my relative's initial concern. Why haven't I told everyone about the cancer?

Simply put: I enjoy normal conversations with family and friends.

"How are you doing?"

Sure, it is a simple question. But this most common of questions takes on considerable heft when tainted with the knowledge of someone's treatment for cancer. You soon realize every answer is incomplete until you have again addressed the "cancer."

Please don't misunderstand. I appreciate the care, concern, and compassion extended by all my family, friends, and strangers alike. The prayer groups and support I have enjoyed have been a source of great comfort.

After a period of time, however, this patient wanted to be asked that simple question from someone ~ anyone ~ who wasn't aware of my medical condition. I craved normal conversations with people who were only interested in knowing, "what kind of great stuff has been going on in your life?"

This begs another logical question: If this is truly how you feel, why write about the cancer now?

As much as I would like to believe I am living a normal life, I am not. At least for the time being.

I am tired of keeping separate the mental lists of those, "who know," from those, "who don't know."

I am tired of circumventing questions and responding with "half-answers."

And, I am tired of hurting those who, once they have discovered my situation, are slighted by my apparent inability to trust them with the information.

This IS my life. For better or for worse.

I feel great at the moment. I am not now nor have I ever sought anyone's sympathy. I hope anyone who may feel slighted would accept my apology. Your understanding and support wouldn't hurt, either.

In a few months, I will know what my future holds; I remain an eternal optimist.

And, I honestly don't mind if family and friends continue to feel compelled to ask about the "cancer." But do me a favor ~ balance those concerns by also asking,

"What kind of craziness have you been up to lately?"